Mature Life Features

Cecil Scaglione, Editor

Just Ask

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The out-of-control spin ignited by Bev’s recent disastrous diagnoses of debilitating diseases – breast and spinal cancer and ALS – has become a bit more manageable because of some welcome experiences with care, comfort and support personnel and organizations we’ve encountered who have taught us to ask.

Our first major eye-opener occurred when we were faced with a thousands-of-dollars-a-month chemotherapy medication the oncologist prescribed. We said we just can’t afford that much. A patient advocate on staff called us in and asked for a copy of last year’s income-tax return. A few days later we were notified the medication would be provided for us – FREE. The staffer told us to just ask for her whenever we feel the need for some support, whether it’s economic or emotional.

Then, during our first appearance at the ALS doctor’s regular clinic, monitoring tests were conducted by several medical experts and we also met with an ALS organization volunteer. A few days later, a delivery man dropped by with toilet support bars (which he installed for us) and a transport wheelchair.

“They’re on loan until you’re through with them,” he said. “If there’s anything else you need, just ask.”

While there is no stopping the disease chewing away at her nerve cells, these are just a couple of the several events that are making Bev’s life more comfortable by simply asking.

 

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Written by Cecil Scaglione

June 3, 2018 at 7:43 am

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